Patient-Reported Outcomes

4. Individualizing Quality of Life Measures

Exercise 3

In the illustration below is an example of three individuals and indicators for their personal importance levels for five areas of their lives. Using your mouse, slide the orange dot in the bottom bar to different places of health to view how the importance of these areas change depending on whether the person is well or ill.

Ask three individuals you know what they would define as quality of life and how it might change if they were ill versus well.

The five important areas of their lives are; caring for self, exercise, eating well, sleeping, friends.

The personal importance levels are; Very Important (5), Important (4), Somewhat Important (3), A Little Important (2), Not Important (1).

The three individuals in this example are:
Person A- Female, 24, Single, Graduate student, no children
Person B- Female, 42, Married, Dual Income, 2 children
Person C- Male, 31, Divorced, In a relationship, Non-custodial parent of 1 child, Regular at gym

When the user slides the orange dot along the bottom bar representing the health of the individual (well, moderate and ill) the 5 areas of importance (caring for self, exercise, eating well, sleeping, friends) fluctuate amongst the 3 individuals. This exercise expresses how these 5 areas of life change in level of importance depending on the individual and their sickness level.

Graphs shift as user manipulates sickness level.

  Priority Level- Healthy
Important Factors Person A Person B Person C
Caring for self 3 5 4
Physical Activity 3 4 5
Eating Well 1 3 3
Sleeping 4 1 3
Visiting Friends 5 2 4

  Priority Level- Less Healthy
Important Factors Person A Person B Person C
Caring for self 2 5 4
Physical Activity 1 3 5
Eating Well 2 3 3
Sleeping 4 2 1
Visiting Friends 4 2 4

  Priority Level- Sick
Important Factors Person A Person B Person C
Caring for self 3 4 3
Physical Activity 2 2 4
Eating Well 2 2 2
Sleeping 4 3 2
Visiting Friends 1 1 3

  Priority Level- More Sick
Important Factors Person A Person B Person C
Caring for self 4 3 2
Physical Activity 3 2 4
Eating Well 2 3 1
Sleeping 4 4 3
Visiting Friends 1 1 2

  Priority Level- Very Sick
Important Factors Person A Person B Person C
Caring for self 5 3 2
Physical Activity 3 2 3
Eating Well 2 2 1
Sleeping 4 5 4
Visiting Friends 1 1 3